Members of the Huntington Society of Canada were at a Sudbury library Monday night explaining the devastating effects of the progressive brain disorder, Huntington’s disease.
A presentation featuring guest speakers, interactive exercises, and demonstrations showed the daily challenges those with Huntington’s disease face.
Officials with the Cure Huntington’s Disease Initiative Foundation say the disease is a progressive, degenerative neurological disorder which affects movement, mood, and cognitive thinking.
Along with bringing awareness to the disease, the Sudbury event allowed families affected by HD to connect with the staff of the Huntington Society.
Jimmy Pollard has worked in HD specialty care programs for over twenty years and is the author of a cognitive care companion book called ‘Hurry Up and Wait.’
"It's a genetic disease, so each and every child who has a parent with Huntington’s disease, at conception gets a coin flip, to get it or not get the disease. Most folks get it in the prime of their life, in their 30's or 40's. And the HD road they walk is about 20 years." said Pollard.
May is Huntington’s awareness month.
